Bonded to stop the bleeding
Jose Memorial Hemophilia Society – Kenya provides access to care, clotting factor concentrates and treatment for people affected by a bleeding disorder in Kenya.
Who we are
JMHSK is a non-governmental organization committed to supporting people living with hemophilia and other bleeding disorders in Kenya. It began in 2008 in memory of Jose, who passed away in April 2007 due to hemophilia complications at age six.
Our Mission
To provide comprehensive care and medical support to the bleeders’ community through medical supplies (factor) and financial support, building a thriving bleeding disorder community in Kenya. From our Nairobi office we have distributed over 1,869,778 IU of factor to date.
Our Programs at a Glance
We run four programs: Family & Livelihoods (sponsorship, scholarships, micro enterprise grants and outreach, in partnership with Save One Life), Medical Programs (Project Share – factor and training), Public Awareness, and Organisational Development.
What we have been able to achieve so far
JMHSK Registered Members to date
JMHSK Members living with Hemophilia
Direct beneficiaries from our programs
IU of factor donated through JMHSK to date
What we do
We serve the bleeding disorders community by receiving and distributing donated factor and funding. We also advise and educate members on bleeding disorders.
Family & Livelihoods
Sponsorship, scholarships and micro enterprise grants that help members and their families become self-reliant and productive.
Medical Program
Through Project Share we receive, distribute and donate factor to members, and train them and their families in home care management.
Fundraising & Public Awareness
Campaigns and partnerships that raise funds and make the needs of the bleeding disorders community visible across Kenya.
Organizational Development
Strengthening JMHSK itself so we can serve the community sustainably over the long term.
Estimated people living with bleeding disorders in Kenya
Source: World Federation of Hemophilia, 2017.
5,300
Total country estimates
1,260
Approximate cases diagnosed in Kenya
1%
Global population with von Willebrand disease
850,000
People with other bleeding disorders globally
I realised that something was wrong when Jose started getting mysterious bumps and bruises on his hands and knees as soon as he started crawling. On several occasions I had noticed a little blood on his tongue while breastfeeding him, but assumed that he had just bitten himself.
The full picture of hemophilia care
About us
Our story, staff and board.
Our Programs
Sponsorship, grants, scholarships and Project Share.
About Hemophilia
History, facts and guidance on bleeding disorders.
FAQs
Answers for adults, children, women and parents.
Events
Annual events and what is happening now.
Support us
Give in kind or make a monetary donation.
Your support keeps the bleeding community going
The generous support of individuals and groups allows us to provide services, education and support so people living with hemophilia and other bleeding disorders can lead an active, fulfilling life.